About

On March 5, my former husband and I were at the doctor’s office eagerly anticipating the news of what sex our last child was going to be. Instead of hearing exciting news, we were told that our baby had a significant heart defect where half of the heart is undeveloped and without intervention, the baby would die. Our hearts broke that day and we left the office in tears not knowing what lay ahead for our baby. The next day we walked into the Advanced Fetal Medicine Center at Boston Children’s hospital and our little daughter Isabelle Faith was diagnosed with Hypoplastic Left Heart Syndrome. It is one of the most significant heart defects a child can have, and up until 35 years ago, parents were encouraged to take their babies home to die. She has had the three stage Fontan procedure, involving three open heart surgeries by the time she was three years old. Today, she is a thriving preschooler who loves to run and play without a care in the world. I never would have believed she would have done as well as she has or that we would be watching her grow into the beautiful girl we are so blessed to have in our lives.IMG_5997

2 thoughts on “About

  1. Chris Perez says:

    I’ve enjoyed discovering your blog and reading about your little one’s journey. CHDs are scary but thank God there’s tons of support out there! Best of luck!

  2. Child Life Mommy says:

    Sounds like Isabelle has two extraordinary parents, advocating for her every need. Wishing you all the best in this journey. I’m sure you are becoming familiar with child life specialists, if you ever need a little, please feel free to reach out.
    All the best,
    Shani

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